I am having a week. I suppose this happens, you guessed it, every week, but this week seems to be ending on a rather surreal note, a heavy, hard blow to the gut kind of week. I am writing this in my living room while my friend’s four year old son destroys my bathroom. Equipped with multiple, variously sized plastic containers and some small plastic lizards, Townes is taking a bath. I hear the water splashing in ways that could only occur when hitting the floor. I told him he was stinky, he agreed, so now he bathes, and destroys.
Townes has been coming to stay with me off and on for several months. His mother has to take his younger brother, Laszlo, to therapy several times a week; he has a degenerative disorder called SMA. He cannot hold himself up and cannot do most things that a healthy two year old can do. But he laughs and smiles like the best of them, his bright blue eyes sing.
Yesterday (Friday), I received a message from Valerie, Townes’s mother, asking me to work for her, stating that she had been up all night with the little Laszlo. A few hours later I would find myself instead, in the company of Townes, as they were forced to rush Laszlo to the Seattle Children’s Hospital; I have just acquired a child for an undetermined amount of time.
It is hard to have a friend describe to you what it is like to have a sick child. She tells me about how he quit breathing. She tells me that her partner spent 15 minutes trying to “bring him back”. She tells me that she thought they had lost him and about the feeding tube that runs down his nose and the tubes are shoved down to help him breath and the morphine they have to give him now to keep him calm. She tells me all these things as I talk to her on the phone Saturday night, Townes asleep soundly in the living room. She tells me how all the tubes and machines failed during the afternoon and for another short moment, she believed her young son had died.
A friend comes to take Townes for the afternoon so I can work on school stuff (so I can read, that’s all I ever do). It is now Sunday, today, and I have taken the afternoon off of work. I read Proust. I read about his ailing grandmother. “We see ourselves dying, in these cases, not at the actual moment of death but months, sometimes years before, when death has hideously come to dwell in us.”[1] I think about my friend and her fiancé standing over the bed of their youngest child. Is death looming over too? Has death entered their life, an unwanted intruder? I am trying to remain positive. I continue to read through the Proust; it seems so unimportant.
I find out through a text message that Townes’s father will be coming down from the hospital to retrieve him tomorrow, they want the family to be together. I think again of the Proust and the relationship that our narrator had with his mother and grandmother. I think of little Laszlo and the love that his mother feels for him. I think of the way that she must be feeling right now, being so close to losing a child.
Perhaps the relationship that Proust wrote of Marcel and his mother, is just how love works when someone has been so close to death. Maybe in sickness and the reality of death looming changes things. Maybe the love Marcel felt for his mother was honest. Maybe it is us who do it wrong.
Townes is currently watching the Ewok Adventure with my house mate. He occasionally bounds over and asks him what I am doing, I am sitting in another part of the house. I explain that I am doing homework for school. He tells me that he didn’t know grown-ups could go to school, rolls his eyes, and returns to the couch. Earlier he told me that Laszlo was sick. He asked me if I knew that his mom and dad had gone to the hospital. I wonder what he thinks and what he knows. I wonder what he will remember from all of this. I wonder what all of us will remember from this.
[1] The Guermantes Way page 430